Our new newsletter and Batten Bulletin isavailable for you to download.Read about our work and our future plans.Please pass on to friends, families or colleagues and help us raise awareness of Batten Disease.
With your support we can help support families living with the devastating diagnosis of Batten disease
The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.
Thank you so much for your support
How your donation can help
£5 a month provides a support and information folder for a newly diagnosed family
£20 a month
helps to run our family support services
£50 a month enables us to run training workshops for professionals to educate them on Batten disease