General: 07354 486 586   |   Fundraising: 07511 821 181   |   Support: 0800 046 9832  
Awareness Profile 2017

On the 9th June, we would like to mark Batten Disease Awareness Day and we would love for you to help us turn the world orange! Without awareness our job of securing vital services for families and essential research into potential therapies and ultimately a cure is so much harder. We would love to see your photos, selfies and ideas. We may be rare but together we are mighty and we will make the difference.

Get Involved!

You can get involved on social media, use the #battendisease and also download and use our Facebook, Twitter and Instagram Headers and profiles pictures on your accounts.

Click on the links, and then save the pictures. Upload them and spread the word!

Facebook Profile Pic

Social Media Header Photo

Donate to the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

Thank you for making a donation to the work of the BDFA.

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease