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On the 3rd June, we would like to mark Batten Disease Awareness Day and we would love for you to help us turn the world orange! Without awareness our job of securing vital services for families and essential research into potential therapies and ultimately a cure is so much harder. We will be posting ideas for how you can spread the word and we would love to see your photos, selfies and ideas. We may be rare but together we are mighty and we will make the difference.

Get Involved!

You can get involved on social media, use the #battendisease and also download and use our Facebook, Twitter and Instagram Headers and profiles pictures on your accounts.

Click on the links, and then save the pictures. Upload them and spread the word!

We even have one you can add your own picture to! Or you can ask Paul to do this for you!

Awareness Day Poster

Facebook Profile

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Twitter Profile

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Instagram Post

Customize Your Own – Contact Paul and he will do this for you! Email him at


Make a donation:

To make a donation please click the button to the right.  This link will then take you to a PayPal page where a donation direct to us can be made.

The amount you enter is your choice and PayPal can collect the funds from a debit or credit card account.

Thank you for your donation.