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On June 5th we would like to mark Batten Disease Awareness Day and we would love for you to help us turn the world orange! Without awareness our job of securing vital services for families and essential research into potential therapies and ultimately a cure is so much harder. We will be posting ideas for how you can spread the word and we would love to see your photos, selfies and ideas. We may be rare but together we are mighty and we will make the difference. Thank you

Get Invloved!

You can get involved on social media, use the #battendisease and also download and use out Facebook, Twitter and Instagram Headers and profiles pictures on your accounts.

Click on the links, and then save the pictures. Upload them and spread the word!

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Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

All donations help us to provide the best support we can to families affected by Batten Disease.

Please do leave us a note about the donation or fundraising so we know what you have been

doing to support us and who to thank.

Thank you for your support.