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AGM 2023


NOTICE OF MEETING

NOTICE IS HEREBY GIVEN that the 2023 Annual General Meeting of the Batten Disease Family Association will be held via a Zoom video call between 10:30-11:30 am on Saturday 26th August. The meeting is scheduled to last about 1 hour.

To participate you will need to register for a ticket at https://www.eventbrite.co.uk/…/bdfa-agm-2023-tickets…

We do hope that you will be able to join us at the event, the AGM is a legal requirement and held annually and we require as many members and families to join us as possible to enable to charity to move forward.
 
If you have any queries, please contact Lisa at admin@bdfa-uk.org.uk
 
We look forward to seeing you there.

Donate to the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

DONATE

Thank you for making a donation to the work of the BDFA.

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease