The Batten Disease Family Association will be holding their Annual General meeting on Saturday 25th June 2022.
This meeting will be held virtually via Zoom meetings. Registration details and link for meeting will follow with agenda nearer to the time.
🔜 More information will follow soon. Any queries, email Lisa, admin@bdfa-uk.org.uk.
With your support we can help support families living with the devastating diagnosis of Batten disease
The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.
Thank you so much for your support
How your donation can help
£5 a month
provides a support and information
folder for a newly diagnosed family
£20 a month
helps to run our family support services
£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease