General: 07354 486 586   |   Fundraising: 07511 821 181   |   Support: 0800 046 9832  
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Well the Christmas charity single made it all the way to the no 1 position in the official UK physical singles charts!!

Huge congratulations and thanks to our friend and supporter David McGovern for this amazing achievement. David has worked so hard to raise awareness of Batten disease, giving us a voice through music, which is such a special thing.

Thank you David from all of us at the BDFA and the whole Batten community 🧡

Donate to the work of the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease