General: 07354 486 586   |   Fundraising: 07511 821 181   |   Support: 0800 046 9832  
Reg Bio Meeting Dec 23
   
Dear Families,

As per our communication on social media yesterday the BDFA would like to invite you to attend a short call on Thursday 21st December at 12pm.

The purpose of the call is to update you on our PR and communications regarding the Regenexbio news last month that they have halted enrollment in their development programmes RGX-181 and RGX-381.

We hope that you will be able to join us and we look forward to speaking with you.

Please find the zoom link below-

Join Zoom Meeting
https://us02web.zoom.us/j/83485603563?pwd=d3g3ZGQ1QTVITUFWMTEvdDM2VW5oUT09
 
Meeting ID: 834 8560 3563
Passcode: 972588
 
     

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With your support we can help support families living with the devastating diagnosis of Batten disease

Thank you for making a donation to the work of the BDFA.

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease