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Blue Speech Bubble World Health Day Facebook Post

BDFA MEDICAL WEBINAR

Wednesday 22nd April- 11am

We are holding our first BDFA Medical Webinar next Wednesday at 11am.

We welcome our guests for this event Professor Paul Gissen and clinical nurse specialists Laura Lee and Becky Bower. They will be discussing Batten disease and associated medical issues and issues arising from in the current context of Coronavirus.

 

Please send any questions in advance to Amanda on her email amandamortensen@bdfa-uk.org.uk

Join the BDFA Coronavirus closed group if you want to join us, then sign up for this meeting through the link to register on Zoom.

https://www.facebook.com/groups/655927168285113/?source_id=114321948589290

 

After registering, you will receive a confirmation email containing information about joining the meeting.

We hope to see you there,

The BDFA Team

 

 

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With your support we can help support families living with the devastating diagnosis of Batten disease

Thank you for making a donation to the work of the BDFA.

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

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£5 a month
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folder for a newly diagnosed family

£20 a month

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£50 a month
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Batten disease