General: 07876 682589    |   Fundraising: 07745 210212   |   Support: 0800 046 9832  
Blue Speech Bubble World Health Day Facebook Post


Wednesday 22nd April- 11am

We are holding our first BDFA Medical Webinar next Wednesday at 11am.

We welcome our guests for this event Professor Paul Gissen and clinical nurse specialists Laura Lee and Becky Bower. They will be discussing Batten disease and associated medical issues and issues arising from in the current context of Coronavirus.


Please send any questions in advance to Amanda on her email

Join the BDFA Coronavirus closed group if you want to join us, then sign up for this meeting through the link to register on Zoom.


After registering, you will receive a confirmation email containing information about joining the meeting.

We hope to see you there,

The BDFA Team



Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

All donations help us to provide the best support we can to families affected by Batten Disease.

Please do leave us a note about the donation or fundraising so we know what you have been

doing to support us and who to thank.

Thank you for your support.