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BDFA NEWS Temp

We are delighted to share our news bulletin, the first for some time, with you.

We are very excited about our new partnership with the Maypole Project. The Maypole project has been running our Sibling Sanctuary and we are pleased to announce that from today families can now refer in for confidential 1:1 counselling and other therapeutic support and that this is free of charge to our families. More details in the newsletter.

We are planning to ensure that families have regular news bulletins and newsletters going forward and we welcome your ideas on this.

Amanda and the BDFA team

Donate to the work of the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease