General: 07354 486 586   |   Fundraising: 07511 821 181   |   Support: 0800 046 9832  
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BDFA Peer Befriending Team had a weekend away together in London in April, organised by Peer Befriending Coordinator Mimi Petty. The team met together in person to receive training and also to spend time together, offering one another support.

‘Thank you so much for a wonderful weekend away. It was an enriching experience which allowed us to build closer bonds as a team. With our team being located all around the country, it was very beneficial to have the opportunity to come together and spend time in person.

The nature of our team and our role in offering support in a Befriending capacity is a very unique and often emotional role, as we draw upon our experiences in order to support fellow Batten families, so to talk and share ideas and experiences is so much nicer in person.’

Gail Rich, Peer Befriender

If you are interested in supporting other parents in the BDFA community and in training to become a Peer Befriender please get in contact with Mimi, Peer Befriending Coordinator.

Please also contact Mimi if you would like to be supported on a regular basis by a BDFA Peer Befriendermimipetty@bdfa-uk.org.uk 07787 755 278

Donate to the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

Thank you for making a donation to the work of the BDFA.

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease