Lynsey Dent, one of our BDFA Peer Befrienders, speaks on this podcast about what it’s like to be a bereaved parent, after she lost her children Ellie Mae and Caleb to Batten disease.

She also speaks about how our BDFA Peer Befriending Service can help parents feel less alone, as they are supported and ‘walked beside’ on their Batten journey, by a fellow parent.

You can listen to the episode here

If you are interested in using our Peer Befriending service, or would like to discuss about training to become a BDFA Peer Befriender, please contact Mimi Petty, Peer Befriending Coordinator mimipetty@bdfa-uk.org.uk