Do you, a friend, relative or colleague have the time, skills and commitment to support our work and help us achieve our vision of a world without Batten disease? We have vacancies on our Board of Trustees and would love the opportunity to talk to you about how you can help.
If you would like to know more please contact Lucy Roose on admin@bdfa-uk.org.uk or 01252 416110.
With your support we can help support families living with the devastating diagnosis of Batten disease
The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.
Thank you so much for your support
How your donation can help
£5 a month
provides a support and information
folder for a newly diagnosed family
£20 a month
helps to run our family support services
£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease