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Boris the BDFA bear has some big news! He is off on his long awaited UK tour!

Like the rest of us, Boris had his holiday plans cancelled last year due to COVID so now he’s is making up for it and is off on his travels again starting this Christmas!

Boris and his suitcase are going to be on the road joining our amazing Batten families over the next year, he will stay for a week with a family and his journey can be documented in this travel journal and the website for all the other families to read and see what he has been up to. He cannot wait to see you and get cuddles from you all!

His suitcase if FULL of things to help Boris settle in and make himself at home. He is off to be with a family for Christmas and we already know he is going to be spoilt rotten!

If you would like Boris to come and stay with your family soon, please do drop Lisa an email at admin@bdfa-uk.org.uk and we will get him booked in for a visit!

We cannot wait to see what he will get up to with you all.

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With your support we can help support families living with the devastating diagnosis of Batten disease

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folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
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Batten disease