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Pre Order Beautiful Girl By David McGovern In Aid Of The BDFA Now!

The official Single of the Batten Disease Awareness campaign in now available to pre order on iTunes and pre save on Spotify!! After reaching No.2 in the Official UK Physical Charts with his cover of East 17’s classic Stay Another…

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HAVE YOU SIGNED UP YET? ‘13 In Whatever Way To Raise 13k For Awareness Day

HAVE YOU SIGNED UP YET???? ‘13 in whatever way to raise 13k for Awareness Day ’We have launched an exciting fundraising event for Awareness Day to raise much-needed funds for the BDFA. It is an event that we hope the…

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International Batten Disease Awareness Day News 2021

The BDFA team recently had a meeting to plan events around this year’s Awareness Day! The following are ideas that we came up with and we hope that as many of our families as possible will join in with them.…

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