General: 07876 682589    |   Fundraising: 07745 210212   |   Support: 0800 046 9832  
BDFA Office Opens

Thank you to everyone who made our office launch such a success and to each of you who support the BDFA every day in our work.

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Roald Dahl Marvellous Children’s Charity

The BDFA work closely with the Roald Dahl Marvellous Children's Charity. They have launched an exciting programme entitled ‘Precious Moments. The programme is looking at health communications and is being delivered in partnership with Contact A Family. They are calling…

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2015 Well Child Awards – Call For Nominations

Nominations have opened for the 2015 Well Child Awards. These annual awards, supported by long term partner GSK, celebrates the inspirational qualities of the UK’s seriously ill children and young people along with the dedicated health professionals who go that…

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Freemasons Donate £850 To Batten Disease Family Association

On 29th January Farnborough Freemasons from Mercury Lodge presented a cheque for £850 to Andrea West, Chief Executive Officer of the Batten Disease Family Association, to support them in all their valuable work providing help and assistance to children with…

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#raredisease Day – Our Full Support

BDFA are supporting this years Rare Disease Day on February 28th. 2015 marks eight consecutive, successful years of Rare Disease Day. Continuing the momentum, Rare Disease Day 2015 puts the focus on the daily lives of patients, families and caregivers…

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BDFA ‘New Office’ Launch

You are all invited to our New Office Launch on February 27th 2015 - 12-2pm A chance to meet the team and find out more about what we do. Refreshments provided! The Old Library, 4 Boundary Road, Farnborough, Hants, GU14 6SF Link…

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British 10K London Race 2015

NEW YEAR NEW START! Feeling a little jaded after the excess of Christmas? Looking for some inspiration to make a difference to Batten Disease? Wanting to set yourself a New Year challenge? Why not sign up for the British 10K London Race and…

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Family Conference 2014 Video

After the success that was our Family Weekend, we have the video highlights ready for you to see! Please watch and share!  

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Kidz Up North – November 20th

Thursday, 20th November 2014 – 9.30am – 4.30pm EventCity, Barton Dock Road, Manchester, M17 8AS, (Near the Trafford Centre) More Info here Free entry, free parking, fully accessible! The show guide for this event is now attached. · Do you know…

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An Amazing Weekend

The BDFA Family Conference is over for another year. Lots of families, children and professionals attended. Once we have had chance to re group, we shall have a full review of the weekend. You can see more pictures on our Facebook…

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Thank you for your support.