General: 07354 486 586   |   Fundraising: 07511 821 181   |   Support: 0800 046 9832  
Thank You! Our Big Give Christmas Challenge Total Is…….

A grand total of £12,242.50 including Gift Aidhas been raised through our Big Give Christmas Challenge 2023!Thank you! We would like to say a huge thank you for your support in raising such a phenomenal amount, which will fund our…

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One Donation, Twice The Impact! The Big Give #ChristmasChallenge 2023 Is Here And We’re Asking For Your Support!

Would you like to give the gift of companionship this Christmas and see your donation have twice the impact? The Big Give #ChristmasChallenge 2023 is here and we’re asking for your support! The Batten Disease Family Association are raising funds…

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October 6th Is Make Some Noise Day – Save The Date!

We’re proud to be one of the 41 small charities supported by Global’s Make Some Noise this year. Global is home to some of the UK’s biggest and best-loved radio stations including Capital, Heart, Classic FM, Smooth Radio and Radio X. On…

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Easter Hunt Boxes On Sale Now!

Special charity Easter hunt buckets available to buy now! It’s the 10th Anniversary of Beefy's Charity Foundation and the BDFA is one of the four charities they support alongside (add the handles for the other charities which are Blood Cancer UK,…

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Egg-citing BDFA News For Easter

Launching later this week the BDFA will have special Easter hunt buckets available to buy from our online shop, filled to the brim with delicious chocolates, including some specially wrapped in BDFA colours and our logo. Our wonderful supporters, Beefy's…

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Dr Joanna Nightingale, BDFA Scientific Officer In New Role Of Head Of Scientific Affairs

The BDFA is very pleased to announce that Dr Joanna Nightingale, our part-time Scientific Officer, will take up a new expanded role from April. Joanna will take up the role of Head of Scientific Affairs, a full-time post which will…

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BIG GIVE CHRISTMAS CHALLENGE 2022 – ONE DONATION, TWICE THE IMPACT! MIDDAY TUESDAY 29TH NOVEMBER TO MIDDAY TUESDAY 6TH DECEMBER We are very excited to share with you that the Batten Disease Family Association has been selected to participate in…

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We are very excited to share the news that our Awareness day single by 'Poppy' - "When You Were With Me" will be available on LIMITED EDITION CD SINGLE on 17th June, as well as digitally on 6th June 2022.…

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International Batten Disease Awareness Day New- June 9th 2022

Here at the BDFA, we have exciting plans for awareness day and we really hope you can help support Batten disease and help us turn the UK orange to raise awareness on June 9th! There are so many ways you…

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BDFA Christmas Charity Single Made It All The Way To The No 1!

Well the Christmas charity single made it all the way to the no 1 position in the official UK physical singles charts!! Huge congratulations and thanks to our friend and supporter David McGovern for this amazing achievement. David has worked…

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