Claudia Alejandra Soto has just completed a Tough Mudder Challenge, ahead of doing the London 10K in July. If you would like to support her, visit her Just Giving Page!
Jenny Shackleton ran the WOLF Run to raise money for the BDFA. Although really cold, she did an amazing job and completed the course! Have a watch of the video! https://www.youtube.com/watch?v=NCA-xqUoBPw&feature=youtube_gdata&app=desktop
Our Newsletter and Bulletin are now available for download below. Please have a read! Spring Newsletter 2015 Spring Bulletin 2015
We have places in a whole series of events over the next 9 months ranging from road runs, muddy runs, cycling and long walks! A lot of the events listed below have distance options; just contact us to find out…
Thank you to everyone who made our office launch such a success and to each of you who support the BDFA every day in our work.
Carly and Paul Hadman set up stamp collection boxes in banks and shops across the Fens as part of an appeal to raise awareness and funds to find a cure for Late Infantile Batten Disease which their daughter Effie was…
On 29th January Farnborough Freemasons from Mercury Lodge presented a cheque for £850 to Andrea West, Chief Executive Officer of the Batten Disease Family Association, to support them in all their valuable work providing help and assistance to children with…
Did you know, for the price of a cup of coffee you could help the BDFA in a big way. Making a regular donation of just a few pounds a month means we can plan the funding of essentials such as the…
We have signed up as a charity that can now be supported by Recycle4charity - head over to the website and see if you can help. You can recycle ink cartridges and mobile phones, both of which we all go through…
NEW YEAR NEW START! Feeling a little jaded after the excess of Christmas? Looking for some inspiration to make a difference to Batten Disease? Wanting to set yourself a New Year challenge? Why not sign up for the British 10K London Race and…
