General: 07876 682589    |   Fundraising: 07745 210212   |   Support: 0800 046 9832  

We have places in a whole series of events over the next 9 months ranging from road runs, muddy runs, cycling and long walks! A lot of the events listed below have distance options; just contact us to find out more.

Download the list of events you can get involved with!

All money raised will be used to fund research into the NCL’s, in conjunction with Sparks, the children’s medical research charity. Please note, there are minimum fundraising targets for each event.

If you think you are up for the challenge, contact Kate and Gaynor, your fundraising team on 07876 682589 or email

You can now also find us on Facebook at BDFA Fundraising

So dust off those trainers, get those wheels oiled and raise some money for essential research into the causes of Batten disease. Together, we WILL make a difference.

Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

All donations help us to provide the best support we can to families affected by Batten Disease.

Please do leave us a note about the donation or fundraising so we know what you have been

doing to support us and who to thank.

Thank you for your support.