The BDFA funded Clinical Nurse Specialist Katie Hanson has left her post as Batten CNS at Great Ormond Street Children’s Hospital. She can still be contacted, if needed by families, until a new Clinical Nurse Specialist for Batten disease is appointed. We are working with the team at GOSH to make this happen as quickly as possible and to minimise any disruption to families. We wish Katie all the best for her future career.
With your support we can help support families living with the devastating diagnosis of Batten disease
The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.
Thank you so much for your support
How your donation can help
£5 a month
provides a support and information
folder for a newly diagnosed family
£20 a month
helps to run our family support services
£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease