General: 07354 486586   |   Fundraising: 07745 210212   |   Support: 0800 046 9832  
Bbdf Logo

New advance to the Theranexus and BBDF Batten-1 program for juvenile
Batten disease (CLN3)

Read the press release from Beyond Batten and Theranexus regarding Phase I/II trial data at the link below.

https://beyondbatten.org/wp-content/uploads/2023/01/Theranexus_PR_Batten-1_Program_VDEF.pdf

They are hosting a Quarterly Family Research call on Thursday, January 19 at 9.30pm UK time to provide an update on Batten-1 (previously BBDF 101) and other scientific advances in CLN3 disease. 

You must register in advance to participate in the call. You can sign up at the link here…. https://sam-firm.zoom.us/meeting/register/tZ0sf-mtqDoiG9DsthDUwnfwXHrYvJNR0UPO

If you are not able to participate, we will make the recording available. If you have specific questions, please send them in advance to info@beyondbatten.org so we can be sure to address them in the presentation.

We hope you can join them for this meeting.  

Make a donation:

To make a donation please click the button to the right.  This link will then take you to a PayPal page where a donation direct to us can be made.

The amount you enter is your choice and PayPal can collect the funds from a debit or credit card account.

Thank you for your donation.