Skip to main content
Ceiling Menu
  • News
  • Events
  • Shop
Donate contact us
Main navigation
  • Batten Disease
    • What is Batten Disease?
    • Types of Batten Disease
  • Support
    • How The BDFA Can Support Us
    • Family Well Being Service
    • Support Resources
    • BDFA Family Folder
    • Peer Befriending Service
    • Education & Schools
    • Benefits & Grants
    • Specialist Treatment Centres across the UK
    • Transition to Adult Services
    • Palliative and End of Life Care
    • Bereavement Support
    • Childhood Dementia And Batten Disease
  • Community
    • Batten Stories
    • Family Events & Workshops Calendar
    • Regular Virtual Family Meet Ups
    • Bertie’s Helpers
    • Batten Disease Awareness Day
    • Regular Virtual Family Meet Ups
  • Research & Treatment
    • Research Overview
    • Science Behind Batten Disease
    • NCL Genetics and Diagnosis
    • Enzyme Replacement Therapy
    • BDFA and community funded research
  • About us
    • Introduction & Our Purpose
    • Our History
    • Our Team
    • Work For Us
    • Policies
    • Annual Reports & Accounts
    • Our Strategy
  • Get Involved
    • An Introduction from Sir Ian Botham
    • Donate
    • Take Part in an Event
    • Fundraising for us
    • Fundraising "Spotlight"
    • Corporate
    • Trusts and Foundations
    • Special occasion fundraising
    • Gifting in Memory
    • Gift in Wills
    • Regular Giving
    • Gift Aid
Donate

Breadcrumb

  1. Community
  2. Batten Stories

Batten Stories

Tammy tells us about daughter Tia

Find out more

The Rich family

Find out more

Ava-Bella's Story

Find out more

Blanie's Story

Find out more

Caitlin's Story

Find out more

James and Annabel's Story

Find out more

Jeffrey's Story

Find out more

Kayden's Story

Find out more

Laura Lee's Story, Clinical Nurse Specialist

Find out more

Matthew's Story

Find out more

Mimi's Story

Find out more

Nina and Lena's Story

Find out more

Poppy's Story & Official 2022 BDFA Awareness Day song

Find out more

Rebecca's story

Find out more

Rio's Story

Find out more

Adam Ockelford, The Amber Trust

Find out more

Pagination

  • First page « First
  • Previous page ‹ Previous
  • Page 1
  • Page 2
  • Current page 3
  • Page 4
  • Page 5
  • Page 6
  • Next page Next ›
  • Last page Last »
BDFA Newsletter

Thank you for signing up for the BDFA Newsletter!

Making a difference together

Donate

We are the only registered charity providing professional support to individuals and families affected by Batten Disease in the UK.

BDFA is a working name of the Batten Disease Family Association CIO.

Registered Office: BDFA, PO Box 379, Shipley, BD18 9GE

The BDFA is a charity registered in England and Wales 1205650

Contact Us

If you have any questions or would like to discuss anything with someone from BDFA, please contact us.

Get in touch

Subscribe to our mailing list

If you'd like to stay informed & up to date with BDFA Events and News please subscribe to our mailing list here.

Sign Up
©BDFA 2014 - 2026
  • Privacy Policy
  • Complaints
  • Website Terms of Use
Website by Nurture IT