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We are the only registered charity providing professional support to individuals and families affected by Batten Disease in the UK.

BDFA is a working name of the Batten Disease Family Association CIO.

Registered Office: BDFA, PO Box 379, Shipley, BD18 9GE

The BDFA is a charity registered in England and Wales 1205650

If you have any questions or would like to discuss anything with someone from BDFA, please contact us.

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