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These days provide valuable training, information and resources for education professionals working with children and young people with an NCL diagnosis. It will be a time for education professionals to get together and share good practice as well as learning more about the disease itself and the effects this can have on a child’s learning.

If you know of any education professionals from your child’s school who would like to attend please contact Harriet with the details of the school and she will email them or you can get the school to email Harriet for more information. –

Download the Booking Form Here

Download the Training Day Programme

Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

All donations help us to provide the best support we can to families affected by Batten Disease.

Please do leave us a note about the donation or fundraising so we know what you have been

doing to support us and who to thank.

Thank you for your support.