General: 07354 486 586   |   Fundraising: 07511 821 181   |   Support: 0800 046 9832  
Neil Dunford

Have a look at the Education Page on our website for more information on the up and coming Education days.

Join us and staff from New College Worcester, The Royal Blind School and Linden Lodge in their respective training days to find out more about an Erasmus+ project to improve educational opportunities and non-medical interventions for a disadvantaged and very low frequency group in Europe – children and young people with Juvenile Neuronal Ceroid Lipofuscinosis (JNCL), also called CLN3 disease or Batten disease.

Donate to the work of the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease