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Evelina London are looking to collect information from your child’s medical records as well as the results of any tests that your child may have had, and we may also ask your permission for researchers to use existing samples of biological material (i.e. blood, skin cells, other cells) that may have been taken during the period of confirming the diagnosis. We will not ask your child to undergo any extra tests or procedures for the purpose of this study.

If you would be willing to help us with this study, please contact me on 0207 188 3998 or for further information.

Read the full letter here

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