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Copy of Conference 2022 poster 2

We are pleased to announce the launch of tickets for the BDFA family conference, which are now available to book

The BDFA are so excited to be able to bring this event to you all again after a few years break, it will be so good to get together in person.
You will have noticed the change in date for the event, this is due to circumstances beyond our control, and we do hope that you will still be able to join us in September.

Conference details


Crowne Plaza Stratford Upon Avon, an IHG Hotel

Bridge Foot, Stratford-upon-Avon, England, CV37 6YR


Saturday 24th September 2022, starting with the welcome at 11am-

Sunday 25th September, ending at 4pm


Important Information for event


  • Each person attending the event needs to book a ticket.
  • Adult carer tickets are free, up to two carers per affected child in the family.
  • All children are free of charge to attend.
  • Other adults/ family members are welcome to the event, but there will be a charge for these tickets.
  • Ticket includes lunch on the Saturday and breakfast on the Sunday


  • All tickets include accommodation on the Saturday night if required, paid for by the BDFA. Please select this at the booking process. After you have booked, we will be in contact regarding more details.


  • Please note– Rooms are available at the hotel for the Friday evening should you wish to arrive the night before the event, but attendees will need to book and pay for this with the hotel directly.

 Dinner on Saturday evening

The BDFA will be holding a dinner event on the Saturday evening, please select tickets for this in the booking process so we know who is attending.

The conference is still very much in the planning, so more details will come out in due course.

If you have any barriers to you joining us in terms of travel or support please can you email
Any queries or issues booking tickets, please contact Lisa at

Take a look at the video below to see what we got up to on a previous conference!

We are sending our love and thoughts to the families of the children who featured in this video who are no longer with us.

Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

All donations help us to provide the best support we can to families affected by Batten Disease.

Please do leave us a note about the donation or fundraising so we know what you have been

doing to support us and who to thank.

Thank you for your support.