Family Stories

General: 07876 682589 | Fundraising: 07745 210212 | Support: 0800 046 9832

Read about some of the Families coping with Batten Disease below.

If you want to share your story, then please get in touch with Our BDFA Support workers Wendy and Cathy here.

Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

All donations help us to provide the best support we can to families affected by Batten Disease.

Please do leave us a note about the donation or fundraising so we know what you have been

doing to support us and who to thank.

Thank you for your support.