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Batten Disease Family Association AGM
Wednesday 21st August 2024

NOTICE OF MEETING

NOTICE IS HEREBY GIVEN that the 2024 Annual General Meeting of the Batten Disease Family Association will be held via a Zoom video call between 19:00-20:00 pm on Wednesday 21st August 2024 to transact the following business.

AGENDA
1. Introduction and Welcome
2. AGM Minutes 2023 – To receive the Minutes of the 2023 AGM
3. CEO Review of the year 2022-2023
4. Treasurer Financial Review of the year 2022-2023
5. Receive the Report and Accounts for the year ended 31 August 2023
6. To re-appoint Taylor Cocks as independent examiner for the year 2023-2024
7. To appoint Mark Thompson as the BDFA Trustee and Treasurer until the current charity is dissolved. (The BDFA is transitioning to a charitable incorporated organisation CIO on the 1st September 2024)

To participate you will need to email Lisa at Admin@bdfa-uk.org.uk, to confirm your attendance, then the zoom link will be sent to you.

We do hope that you will be able to join us at the event, the AGM is a legal requirement and held annually and we require as many members and families to join us as possible to enable to charity to move forward.

Below you can download the documents required for the AGM. Please read and print if necessary for the meeting.

  • A Zoom link will then be provided for access to the meeting via email. You will also need a pc/laptop/tablet with a camera and microphone to “attend” and the ability to use Zoom. If you do not have access to these resources, you may still be able to participate through a phone-in service.
  • It is proposed that ONLY essential business shall be transacted following the Agenda. Individuals wishing to raise a question MUST submit their question in advance by Friday 16th August 2024 to admin@bdfa-uk.org.uk. Where possible the Chairman and Treasurer will seek to answer those questions during their presentations.
  • On-line meeting protocols shall apply, with ONE person speaking at a time and participants needing to catch the attention of the Chairman before speaking (by raising a hand on the software). After you have been “admitted” to the meeting please ensure your microphone is turned on. During the meeting centrally microphones will be muted and opened when invited to speak. We would ask all participants treat each other with respect.
  • It is intended that the meeting shall be recorded for minuting purposes. If you do not wish to appear in the recording, please ensure you switch your camera off.

If you have any queries, please contact Lisa at admin@bdfa-uk.org.uk

We look forward to seeing you there.

Best wishes

Donate to the work of the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease