General: 07354 486 586   |   Fundraising: 07511 821 181   |   Support: 0800 046 9832  
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Many of you know Harriet Lunnemann who is the BDFA support and advocacy worker. Not only does Harriet travel the country supporting families on behalf of the BDFA, she also volunteers with families living with disability in Uganda. Now she has taken on the challenge of running the London Marathon to help fund all of our work. There are truly some inspirational people in this world and Harriet is one of them. Please share and ask friends to support her through those 26 miles, thank you Harriet from all of us.

Sponsor her here!

You can read about why she does all of this and her training blog here – www.harrietlunnemann.co.uk

Donate to the work of the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease