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13 In Whatever Way For Awareness Day Logo


‘13 in whatever way to raise 13k for Awareness Day

’We have launched an exciting fundraising event for Awareness Day to raise much-needed funds for the BDFA. It is an event that we hope the whole family can be involved in!

What is the event? There are 13 types of Batten disease and we are asking fabulous fundraisers to complete a challenge involving the number 13! It would be great if we can get a wide range of families involved, from across the spectrum of Batten disease.

Here are some ideas;

Run/walk 13 miles or 13km

Cycle 13 miles or 13km

Run/walk 13 laps of a field

13 times running up and down the stairs each day for a week

13 press-ups a day

13 steps a day

Make 13 cakes to sell and host a virtual coffee morning

13 words in Braille read each day

13 laps round the block in the wheelchair

13 sensory sessions/engagements

Any other creative idea!

Whatever your 13, you can choose to do it in one day or over the week that includes Awareness Day, 7th – 13th June. You will be able to add yourself as a fundraiser to our Just Giving page and tell everyone what you are doing and encourage people to support you with donations, as you share your story on social media.

It would be absolutely wonderful to have as many people in our Batten community involved, raising awareness and helping to raise funds for the continued work of the BDFA.

Just Giving page is now live, you can get to it HERE.…/BattenDiseaseAwarenessDay2021

Make a donation:

To make a donation please click the button to the right.  This link will then take you to a PayPal page where a donation direct to us can be made.

The amount you enter is your choice and PayPal can collect the funds from a debit or credit card account.

Thank you for your donation.