General: 07354 486 586   |   Fundraising: 07511 821 181   |   Support: 0800 046 9832  

If you would like us to visit your child’s school please email support@bdfa-uk.org.uk and we can arrange a visit. Alternatively you could pass on our details to the school and they could contact us to arrange a visit.

For more education support you can speak to the following organisations:

https://www.sense.org.uk/ – SENSE are a national charity who work with Multi-sensory impaired children. They provide lots of support for families including support with educational meetings and they also can give legal guidance if you are having problems with the Education Health and Care Plans. They also do home visits and school visits to see how best they can support you as a family.

https://www.ipsea.org.uk/about –  IPSEA offers free and independent legally based information, advice and support to help get the right education for children and young people with all kinds of special educational needs (SEN) and disabilities.

Donate to the work of the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease