General: 07354 486 586   |   Fundraising: 07511 821 181   |   Support: 0800 046 9832  
427979559 383027101039391 3590942706511102648 N

It’s International Epilepsy Day – a day for coming together to raise awareness. Batten Disease is one of many rare and complex epilepsies affecting families in the UK. While everyone’s epilepsy journey is unique, we take many steps in common too.

That’s why we’re so pleased to be part of the UK Rare Epilepsies Together network. Stronger together, we strive to improve outcomes for individuals and families through evidencing common unmet needs in diagnostics, treatment and care, to improve overall quality of life. See https://ukret.co.uk

All children and young adults with Batten will experience epilepsy in their lifetime so today is a timely reminder for all of us supporting or living with Batten to make sure individual epilepsy support plans are clear, up to date and accessible.

#EpilepsyDay#myepilepsyjourney#strongertogether

Donate to the work of the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease