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The BDFA is pleased to support the Jeffrey’s Biker Journey 2023 campaign, working with them to raise invaluable awareness of Batten disease as they embark on their multiple rides across the UK over the next 3 months.

We look forward to following and promoting the campaign through our website and sharing updates on our social media channels.

We are thrilled that Triumph Motorcycles will also be promoting the campaign on their social media platforms and that they will be welcoming the riders to their Triumph Factory Visitor Experience in Hinkley on the 12th &13th August as part of the Bikers’ ride. The BDFA have also been invited to attend and we look forward to this wonderful opportunity to raise awareness collectively.

The Ride

The map shows the route of the 2023 ride

JBJ Route Map

Jefferey's Bikers would welcome new recruits to join the group and for the rides to raise awareness.

If you would like more information of how to get involved please contact jeffreysbikerjourney@gmail.com

Visit their Facebook page for more updates       

Another busy weekend for the Bikers

It was another busy weekend for the Bikers as they began the journey back towards Accrington from Scotland ahead of their Homecoming next weekend. The Bikers travelled relay style from Hamilton to Lockerbie on Saturday before heading back into England…

Jeffery’s Bikers Journey 2023- Leg 12

It’s been a busy few weeks for the Bikers as they’ve continued their journey and headed all the way up through Scotland, continuing to raise awareness throughout the country. The Bikers and Junior DaBear have travelled from Edinburgh to Aberdeen,…

Jeffery’s Bikers Journey 2023- Leg 11

Leg 11 It was another successful weekend for the bikers as they rode from Lincoln to Scarborough for leg 11 of Jeffrey’s Biker Journey 2023, and then continued to head north for leg 12 from Scarborough up to Bishop Aukland…

Legs 9 & 10 – Triumph Factory Visitor Experience

The Bikers had a fantastic time at Triumph Factory Visitor Experience raising awareness and funds for the BDFA on Saturday. Leg 9 saw the bikers off from Pure Triumph Wellingborough in the morning before arriving at Triumph Factory Visitor Experience,…

Leg 7 and 8

Despite the rain, Jeffrey’s Bikers and bears enjoyed a coastal ride from Cromer beach last weekend, where BDFA Trustee Bob Thompson handed over Jeff Da Bear to continue raising awareness throughout the country. The next leg of the journey is…

6th Leg of Jeffrey’s Bikers Journey ride

Sunday 30th July saw the 6th Leg of Jeffrey’s Bikers Journey ride from Hastings to Biggin Hill. Junior DaBear was safely handed over to Bob Thompson, a BDFA Trustee, before enjoying a visit to the famous biker cafe Ryka’s on…

Jeffery’s Bikers Journey 2023- Leg 3 and 4!

Last weekend saw two more relay legs take place. On Saturday 22nd July the bikers rode from Swansea to Cheddar Gorge. Leg 4 took off on Sunday from Trowbridge to the Sammy Miller Motorcycle Museum who welcomed the bikers and…

Jeffery’s Bikers Journey 2023- Leg 1 and 2!

Jeffreys Biker Journey 2023 is off to a fine start. A big thank you to Jeffrey’s Soldiers who put in a lot of effort into the set off. Unfortunately, everyone clearly enjoyed themselves so much we don’t have any pictures.…

This year, the campaign is also raising funds for the BDFA at their Batten Awareness Weekend at the Triumph Factory Visitor Experience, Hinckley, the home of Triumph motorcycles.

 

You can donate via the Just Giving page, click here

T-shirts for the ride, supporting the BDFA

Jeffrey’s Bikers have designed a bespoke T-Shirt to promote Jeffrey’s Biker Journey 2023 and the BDFA. The T-shirts are orange, but a blue version is available for the Northern Irish leg of the journey.

100% of the profits will kindly be donated to the BDFA. T-shirts are on sale now and will be available until 1st October 2023. We welcome anyone who would like to show their support to purchase.

JBJ 2023 Ride T Shirt (Orange) – Front JBJ 2023 Ride T Shirt (Orange) – Rear
JBJ 2023 Ride T Shirt (Sapphire Blue) – Front JBJ 2023 Ride T Shirt (Sapphire Blue) – Rear

About Jeffery’s Biker Journey

In May 2021 4 year old Jeffrey Charlesworth was diagnosed with CLN2 Batten disease. We heard about this through a loose family connection and decided that we would like to support the family in some way. None of us had ever heard of Batten disease or the devastating effect it has on children and their families.

As motorcyclists, the obvious thing for us was a ride to raise some funds to help the family and to raise awareness of the disease. As often happens, the idea snowballed and ‘a ride’ became a round Britain relay using a teddy bear as a mascot. That first event in September 2021 was a success, involving riders from Lands End to Orkney and ended after 2000 miles with the presentation of a (rather grubby) bear to Jeffrey.

In 2022 the focus of the ride shifted slightly and awareness became a key component.  We made contact with other families with children diagnosed with Batten disease and delivered 42 ‘support’ bears to children across the country as part of our relay ride. We promoted awareness through the group rides and motorcycle groups that we contacted or randomly bumped into.

For 2023, with the support of the Charlesworth family, we decided to focus on awareness and sought to work with the BDFA to maximise the impact of this years’ event. We have linked up with the Triumph Motorcycle Company and they will be publicising the event through their extensive social media channels. We hope from that to gain more riders for our journey and bring information about Batten disease to an audience who may never have heard about

JBJ 22 18

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