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We are delighted to announce that thanks to every one of you who has run through mud, swam Scottish Lochs, cycled the length of the country, drunk coffee, walked, ate cake, had hair cuts and everything else in between to raise money for the BDFA, we are able to commission the first Batten disease Clinical Nurse Specialist in the UK to be based at Great Ormond Street Hospital in London.

We give our heartfelt thanks to each and every one of you, because it is only together that we WILL make this difference to families living with this devastating disease each and every day.

Download the Job Description

Click here to Apply and for more information.


Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

All donations help us to provide the best support we can to families affected by Batten Disease.

Please do leave us a note about the donation or fundraising so we know what you have been

doing to support us and who to thank.

Thank you for your support.