Thursday 9th June 2022
6pm -7pm
This session is open to all members of the wider family who have been touched by the loss of a loved one to Batten disease.
Please email admin@bdfa-uk.org.uk for the link to join.
If you would like to send us a photograph of you loved one, and anything about them, we will include them in our remembrance video in the session.
With your support we can help support families living with the devastating diagnosis of Batten disease
Thank you for making a donation to the work of the BDFA.
The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.
Thank you so much for your support
How your donation can help
£5 a month
provides a support and information
folder for a newly diagnosed family
£20 a month
helps to run our family support services
£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease