General: 07876 682589    |   Fundraising: 07745 210212   |   Support: 0800 046 9832  


I started the role of Clinical Nurse Specialist for Batten disease in October 2016. I am a qualified paediatric nurse with experience in general paediatrics, neurology, metabolics and research. I am based at Great Ormond Street Hospital but my role is funded by the BDFA, allowing me to support children and families affected by Batten disease throughout the UK.

I am able to offer ongoing support and guidance to your family and to healthcare professionals involved with your child to ensure they continue to receive high quality care as their needs change.

I am available via e-mail, telephone and, where appropriate, a home visit. Please do not hesitate to contact me via details below.

Tel: 020 7829 8721


Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

All donations help us to provide the best support we can to families affected by Batten Disease.

Please do leave us a note about the donation or fundraising so we know what you have been

doing to support us and who to thank.

Thank you for your support.