General: 07354 486 586   |   Fundraising: 07511 821 181   |   Support: 0800 046 9832  

Thank you to everyone who has been in contact about Awareness Day on Friday 7 June. It is great to hear about all your plans to mark this important day; thank you for all your support.

We have put together some materials for you to click on, save and use. Thank you to the volunteer who kindly helped with these. There is a social media profile picture, an email banner that is also a social media banner, and a press release template for you to adapt.

Please use the hashtag #BattenDisease in your posts on and about the day.

We are so looking forward to seeing your pictures and hearing your stories from the day. And of course the International Batten Disease Awareness Day is taking place on Sunday 9 June so we have double the opportunity to raise awareness.

Thank you for your support of this important day.

Profile Picture

Social media/email banner

Press release template

 

Donate to the work of the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease