General: 07876 682589    |   Fundraising: 07745 210212   |   Support: 0800 046 9832  

Latest research has shown the importance of singing with Juvenile Batten Disease. Do you know someone with a diagnosis of JNCL? Would they be interested in taking part in a project about music?

Who can participate?

If you are the parent or guardian of a child aged between 0-18 years who has a diagnosis of Juvenile Batten disease, then this project may be of interest to you. The University of Roehampton are looking for children and education staff to participate.

What will happen?

The project will be looking into the impact of singing on speech and language skills in JNCL. Education staff will be asked to run through a 10 minute daily singing program with your child over the course of year. The aim is to see whether the program can help to maintain speech and language skills. Staff will be asked to make short videos of the music protocol using an app on their mobile phone or other device, which will be analysed as part of a doctoral study with the University of Roehampton.

What should I do next?

Please get in touch! Call Rebecca Atkinson on 01442 780541 or email by 24 July 2019.

Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

All donations help us to provide the best support we can to families affected by Batten Disease.

Please do leave us a note about the donation or fundraising so we know what you have been

doing to support us and who to thank.

Thank you for your support.