This leaflet was designed to answer some of your questions about what the equipment needs will be for a child or young person living with a diagnosis of an NCL disease. The BDFA Support and Advocacy Partner is available to answer any questions you might have concerning the information in this leaflet. They can be contacted on support@bdfa-uk.org.uk or 0800 046 9832.
With your support we can help support families living with the devastating diagnosis of Batten disease
The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.
Thank you so much for your support
How your donation can help
£5 a month
provides a support and information
folder for a newly diagnosed family
£20 a month
helps to run our family support services
£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease