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Video Quote

The BDFA is proud to be part of the ‘Dementia Strikes Children Too’ collaboration with Niemann-Pick UK and the MPS Society, and BioMarin Europe Ltd. The collaboration has launched a new video about childhood dementia.

Please be warned that this video is direct in its message. Some parents and families may find it upsetting to watch and should take this into consideration before watching it.

The aim of the collaboration is to create change within the healthcare system so that children with childhood dementia can access treatments swiftly when there are treatments available.

Please SHARE the video as we want as many people, especially politician and medical professionals, to make the changes needed. We have #NoTimeToWaste for children with #ChildhoodDementia.

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With your support we can help support families living with the devastating diagnosis of Batten disease

Thank you for making a donation to the work of the BDFA.

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

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£5 a month
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folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
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for professionals to educate them on
Batten disease