BDFA Family Conference 2014 2 September, 2014 We are very pleased to invite you to attend the Find out more
Beefy’s Charity Foundation 3 July, 2014 Batten disease is the most common inherited neurodegenerative disease of Find out more
BioMarin BMN190 Trial 30 May, 2014 BioMarin would like to announce that Great Ormond Street Hospital Find out more
Neurological Alliance 28 March, 2014 Batten Disease Family Association welcomes Neurological Alliance’s five calls to Find out more
Improving Rare Disease Education 4 February, 2014 Improving Rare Disease Education and Training for UK Nurses: hugely Find out more
BioMarin CLN2 (Late Infantile Trial) - Evelina London Children's Hospital 12 November, 2013 The Evelina London Children’s Hospital, Guy’s and St Thomas’ NHS Find out more
Autumn Newsletter & Bulletin 5 November, 2013 Our new newsletter and Batten Bulletin is available for you Find out more
The BDFA welcome a new member to our advisory team 23 October, 2013 The BDFA are delighted to welcome Professor Paul Gissen to Find out more
Our New Patron - Andrew Strauss. 10 October, 2013 The Batten Disease Family Association welcomes its new patron, Andrew Find out more
