Theranexus Update for CLN3 Programme 20 February, 2024 Dear Families, You may be aware that there was a Find out more
Taysha Gene Therapies Provides Update on Deprioritized Pipeline Programs 15 February, 2024 Joint Statement to the Global Batten Disease Community On Thursday Find out more
International Epilepsy Day 12 February, 2024 It’s International Epilepsy Day - a day for coming together Find out more
Joint Statement to the Global Batten Disease Community regarding the future of the CLN3 and CLN6 gene therapy clinical programs led by Amicus Therapeutics 6 February, 2024 Dear Batten community, As many of you know, we have Find out more
Join us for parent led zoom meeting, Understanding blended diets for children with a gastrostomy 25 January, 2024 Join us for this parent led session to give other Find out more
Neurogene Announces Business Update and 2024 Outlook, CLN5 Program Update 16 January, 2024 CLN5 Program Update Neurogene has completed enrolment of Cohorts 1 Find out more
New CLN group meetings Facilitated by Sarah Kenrick and Mimi Petty 12 January, 2024 Dear Parent’s, I have enjoyed speaking to most of you Find out more
Update on the ongoing gene therapy trial for treating CLN7 Batten disease, Hosted by Elpida Therapeutics 8 January, 2024 Elpida Therapeutics will be hosting an open virtual meeting via Find out more
Pedal4Memories launches Arthur's Gift initiative 4 January, 2024 The BDFA are really proud to share this fantastic new Find out more
Message from Liz Brownnutt, Interim CEO 21 December, 2023 Dear all, As we approach the end of the year Find out more
Family Support Update 20 December, 2023 Thank you so much for supporting me and helping me Find out more
CLN3 Community News- November 2023 19 December, 2023 Dear CLN3 Community, Please find below some information about the Find out more
