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You can read our newsletters here. The most recent are first, but you can also read past publications.

BDFA News Bulletin February 2021

We are delighted to share our news bulletin, the first for some time, with you. We are very excited about our new partnership with the Maypole Project. The Maypole project has been running our Sibling Sanctuary and we are pleased…

Summer Newsletter 2018

You can read it here Dear Friend Welcome to the latest newsletter from the Batten Disease Family Association. It is the first since I joined as Chief Executive in May and it’s full of news and reminiscences as this year…

BDFA Newsletter – Autumn 2017

Our Autumn Newsletter is available to download and read, if you want a hard copy, please contact admin@bdfa-uk.org.uk Click here to read.  

BDFA Spring Newsletter & Bulletin

Our latest editions of our Spring Newsletter and Bulletin are available to read or download. Download below Spring Newsletter Spring Bulletin BATcure Newsletter  

Newsletter Autumn 2016 – Making the Difference

Our autumn newsletter is available to read. Autumn Newsletter 2016  

Spring Newsletter & Bulletin 2016

Click to download or read the latest BDFA Spring Newsletter & Bulletin BDFA Spring Newsletter BDFA Spring Bulletin

Newsletters – Autumn/Winter 2015

Our Newsletter and Batten Bulletin are both now available for download. BDFA Newsletter Batten Bulletin

BDFA Spring Newsletter & Bulletin

Our Newsletter and Bulletin are now available for download below. Please have a read! Spring Newsletter 2015 Spring Bulletin 2015

BDFA Newsletter – Issue 29

Our latest Newsletter is available to read and download. Click here to read it.

Autumn Newsletter & Bulletin

Our new newsletter and Batten Bulletin is  available for you to download.  Read about our work and our future plans.  Please pass on to friends, families or colleagues and help us raise awareness of Batten Disease. Autumn Newsletter 2013 Batten…

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