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Town Hall Family Meeting July 2024

Dear Families,

The BDFA Team and Trustees would like to invite you to our next quarterly Town Hall Meeting at 7pm on Thursday 4th July 2024.

The purpose of the meeting is to provide families with an update from the team and to give families the opportunity to ask questions. All families and carer’s are welcome. YOu will find further details of the meeting and how to join in the events page.

http://www.bdfa-uk.org.uk/bdfa-events/

If you have any questions or or issues accessing into the meeting, please contact Lisa admin@bdfa-uk.org.uk

Please do join us if you can and we look forward to meeting with you.

To see details of all the upcoming BDFA events, you can find them on our website http://www.bdfa-uk.org.uk/bdfa-events/

Donate to the work of the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease