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AGM 2020

Notice is hereby given that the 2020 Annual General Meeting of the Batten Disease Family Association will be held via Zoom video-conferencing on Saturday 12 June 2021 at 10:00.

Given that the Covid-19 restrictions are only in process of being lifted it is believed that it is important to hold an online AGM to allow business to be transacted soon after the publication of the Accounts.

For more information and to read the agenda for the meeting please go to our website HERE

If you would like to sign up to attend the AGM, please sign up HERE.

We hope to see you all there.

Donate to the work of the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease