ONE WEEK TO GO until International Batten Disease Awareness Day!
What you can do to raiseawarenes and be orange on the day?
Dress in orange, but not just you, the dog, the cat the kids! post to social media and dont forget to tag us and use the hashtags
Use the Facebook frame for the day on your profile picture
Share your story- we already have many of your wonderful stories, photos and videos. It’s not too late to contribute
Send a tie or scarf to your MP with a handwritten note, lets get as many of them wearing them as possible
We know lots of you have got amazing plans, let us know and we will share you activities on our social media pages during the day
Email to firstname.lastname@example.org or post to our facebook