Our Team

At the BDFA, our staff and trustees are united by a shared dedication to supporting families affected by Batten disease.  Each team member brings unique experience and compassion to their role, working collaboratively to ensure that families are never alone on their journey.

Behind the scenes, our trustees help guide the charity and make sure we’re always doing the very best we can. Together, we’re committed to standing beside families, driving research forward, and raising awareness—every step of the way.

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staff trustees 2026

View our organisational chart.

Steve
Jadhav

BDFA Expert

Steve Jadhav is a highly accomplished International Marketer with extensive experience in healthcare marketing, commercial strategy, and scientific sales engagement, gained over a 20+ year career in the pharmaceutical industry.

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Zlatko
Sisic

BDFA Expert

Zlatko Sisic is an internationally recognised medical and business leader with over 20 years of experience in the pharmaceutical and biotechnology industries.

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