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Pride Of Batten Awared 2021 Logo

We are pleased to announce an exciting new annual BDFA initiative,

the Pride of Batten Awards

This is your opportunity to highlight the very best practice across the UK. Who is going the extra mile for your family member with Batten disease? Who would you like to celebrate for their hard work, innovation or kindness? We want to hear about those individuals who have really made a difference whether they be a school transport escort, teaching assistant, social worker, carer, consultant, nurse, therapist or with any other role in your child, young person or adult’s life.

There are four categories: Health, Education, Social Care and Other.

The deadline for nominations is: Friday 12th November 2021.


The winners will be announced and awards given out in a virtual ceremony on Saturday 20th November alongside our celebrations of the BDFA for 20 years as a registered charity. More details will follow about this event soon!

SAVE THE DATE- Saturday 20th November- BDFA birthday event!

If you need any more information, please contact

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