General: 07876 682589    |   Fundraising: 07745 210212   |   Support: 0800 046 9832  

A key aim of the BDFA is to seek to promote excellence in supporting affected UK families and continuing to educate the professionals around them. Please let your care professionals know about the BDFA and the support we can offer them through putting them in touch with other professionals to share their Batten’s expertise, training days and networking opportunities.

Laura Lee / Becky Bower, Clinical Nurse Specialist (CNS), Batten Disease, GOSH


Scientific and Medical Professional Advisors

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Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

All donations help us to provide the best support we can to families affected by Batten Disease.

Please do leave us a note about the donation or fundraising so we know what you have been

doing to support us and who to thank.

Thank you for your support.